december 2010
christmas
Back again.
Well we went to leeds hospital last tuesday, and there wasn't really any good new's owen's skin and muscle biopsy results to determine if he had mitochondrial disorder came back negative, but owen's nuroligist did say that doesn't mean he doesn't have it, his nuroligist now would like me to see another nuroligist to have his opinion on what to do, and were going back to leed's mid january to stay for a week to help with owen's very decreased weight issue, and then back again in april for owen's 4th mri scan, to see if there are any changes from his last one, last year.
The worst new's was when i asked about owen's life being shortened and he said, he think's owen's only going to live a couple more years rarther than decades, which was very hard to take in, but i don't really think about what he said untill i get home, and really i am lost for word's to describe, what i am feeling, i don't no what to expect, i don't no how long my son's got to live, i don't no what life hold's for owen, i don't no if him being ill the past few month's is due to his disability, and i don't no even if he'll ever be diagnoised.
But on the bright side, owen's being very good at the momment except for the being up at half five christmas morning due to owen having a very ragging temperture.
But owen was a very spoilt little boy this year, and i am hoping for 2011 to be owen's year, i am hoping to make as memories as possable, take him place's he's never being, and just all round have fun for a change, instead of waiting for result's and appontments, THIS IS OWEN'S YEAR AND WHAT A YEAR IT'S GONNA BE :)
Well we went to leeds hospital last tuesday, and there wasn't really any good new's owen's skin and muscle biopsy results to determine if he had mitochondrial disorder came back negative, but owen's nuroligist did say that doesn't mean he doesn't have it, his nuroligist now would like me to see another nuroligist to have his opinion on what to do, and were going back to leed's mid january to stay for a week to help with owen's very decreased weight issue, and then back again in april for owen's 4th mri scan, to see if there are any changes from his last one, last year.
The worst new's was when i asked about owen's life being shortened and he said, he think's owen's only going to live a couple more years rarther than decades, which was very hard to take in, but i don't really think about what he said untill i get home, and really i am lost for word's to describe, what i am feeling, i don't no what to expect, i don't no how long my son's got to live, i don't no what life hold's for owen, i don't no if him being ill the past few month's is due to his disability, and i don't no even if he'll ever be diagnoised.
But on the bright side, owen's being very good at the momment except for the being up at half five christmas morning due to owen having a very ragging temperture.
But owen was a very spoilt little boy this year, and i am hoping for 2011 to be owen's year, i am hoping to make as memories as possable, take him place's he's never being, and just all round have fun for a change, instead of waiting for result's and appontments, THIS IS OWEN'S YEAR AND WHAT A YEAR IT'S GONNA BE :)