MAY 2010
but we went back to leeds today for the results of owens mri and gosh i was in for a shock, i dint know what i was actuallt going in for but he was having an eeg in th afternoon also followig another eye test which is completly different to the others he's had, so anyways th consultant showed myself and my mum who came with me the mri scans of owens brain, and there was one which he showed us and pointed out what was wrong, deep down in the brain there was something wrong, telling us that his emzymes are not braking down the chemicals in owens brain properly, which mean more tests so i thought, the consultant then said he thinks he may know what it could possably be, but didnt know if he should say as he needed a blood test sent off to london and will tak 2 months to have to result, so anyways he said he thinks it could possable be infantile batten's disease, which is a genetic progressive disorder and no and early death, onset 6months-2years death can occur in mid-childhood, owen had most of the symptoms to small head, sharp muscle contractions (jerky movements), the chemical that is not breaking down will kill the brain cells and distroy the nervouse system, the child will go blind and suffer dementia, will not be able to communicate and loose ability to do everything thn become bedridden and then die, when i think of it though owens like most of them know he's just like a baby, owens had the test so its a waiting game know, if it is not that oen will have a muscle biopsy, were they will take some muscle from owens leg. when the doctor said about the disease i wanted to know everything about it, he said it may not be that, but just to hear what a doctor thinks it could be gave me hope to maybe have a diagnosis, i dont want to research it to much and i don't want to think about it to much either as, i don't know if owen has this disease, i think if it is then thats the time to think about it but for know im just going to enjoy being with owen and wait for the results.