continued from last post....so 5 day's before his operation i started owen on antibiotics hoping that they would work to get rid of the chest infection, as sometimes one batch of antibiotics haven't worked and he's needed stronger medication, but thankfully they did work, and on the 3rd of June owen had his operation, it took longer than expected and again i was very worried as evey time owen's had an operation he's needed to go to the high dependency unit, the nurse came to get me to go through to recovery to see owen as he was a little distressed after his operation, his heart rate was hight and his oxygen levels were very low as they usually are after an operation, so all indication of HDU were there, owen was crying which he hasn't done since he was a baby so i knew he was in pain, i felt like crying myself because i hadn't seen him do it for so many year's, lots of singing and stroking of his head settled him, which helped bring his oxygen levels up a little and his heart rate back to a normal rate, so he was allowed back onto the ward, i can only put it down to that owen not needing HDU and being so well compared to previous times as he use to be so unwell after operation's is that his weight gain, when he had his operation to stop him from being sick last year, he's put on allot of weight which has helped him in lots of ways i didn't think possible and so i think this has also helped him recover alot better after his operation this time.
we were out the next day from hospital which i couldn't believe as usually we've being in for days after an operation with owen, i was a little apprehensive as how to look after him with these big casts on and how to handle and move, dress and wash him, but i managed, i cute a few of his tops down the back so i could just slip them on over his arm's, he had bed bath's, and moving and handling was the more tricky bit, as i didn't want to hurt his arm's when i carried him or moved him, but i found a comfortable position he liked, i imagined owen waking up all night with being uncomfortable with his arm's but thankfully he's being sleeping very well and i havnt had any problem's with him being uncomfortable asleep in them.
2 weeks after owen's operation we went back to hospital for owen to get his stitches out and a new cast put back on, i didn't expect the cut to be so long and actual stitches that needed to be pulled out, owen did fantastic, he didn't moan once and didn't even flinch when the nurse who were so nice and kind took the stitches out, and instead of a cast being out back on the nurses made owen some splint's even though it's usually the occupational therapist that does them, ive even had comments from owen's hospital occupation therapist at how good they are and that she would find t hard to make them and may have to send owen back to the nurse in future for his casts as they have done them so well, but it know mean's i can take them of to dress him and e can finally have a shower after 2 weeks of having a bed bath.
it was owen's 6th birthday this month, i cannot believe he is 6 years old, it goes so so fast, wen i reflect on the last 6 year's, we've had allot more down's then up's but i like to think of the happy times rather then the sad times, i could think of the fact he cannot do anything, or aware of most thing's, the fact i do not no what he know, or how well he can see or that we have appointments after appointments, the fact i wont ever hear the word mummy from him, or see him sit up, or run, and basically do anything that a 6 year old does, i could think of the times his consultants have told me his condition is terminal or the fact that he's deterioration again, but i try not to obviously i do think of those times every now and then, how can you not, but i like to think of the happier times, that's what keeps you going, the times he smiles which is all the time, the times when you give him cuddles and he's just so content, the times you sing song's and he smiles from ear to ear, the times that we have are little games of making the same noise after each other, the times he's having a shower and he squeels so loud from excitement, the holiday of a lifetime he got to have, and feed dolphins and spend a magical week in Florida, birthday's i keep getting to have, Christmases, Halloween's, Easter's, family parties i keep getting to enjoy them and i keep getting to see how much owen enjoy's them also, are sleepover's at my mum's or my dad's house that he enjoy's owen going to shool and having a fantastic day every time he goes, are little walks through the countryside, especially early in the mornings when the sun's out and there's a little breeze in the air, racing down paths in his wheelchair making car noises and owen finding it so funny, there the times i want to remember, there the times i do remember.
anyway owen had a small birthday party this year just close family, as he'de just had his operation a few day earlier i didnt want to do anything to much, and so i boght a gazebo, decorations and food, and invited all are family round to celebrate owen's 6th birthday, he had a lovely day and got very spoilt as he always does from everyone, as i always do a little theme for his birthday this year i decided he could have a circus themed birthday, so i tried to do as much circus themed thing's i could think from the decorations to owen dressing up as a clown, and my little sister as a clown also, then my brother came as a clown and did some juggling and messing around, which owen enjoyed, i couldn't of asked for a better birthday for owen.
whenever i got to my dad's because he lives next door to a farm it does attract more fly's which seem to get into the house, and as owen just lays on the sofa they go straight to him and to his mouth for saliva, i know it doesn't sound nice, so my dad's made a makeshift tent for owen when he goes, his very owen net tent so the fly's cannot get to him.
i am also going back to benidorm in july for another 5 day's which was very unexpected, my cousin that couldn't make it ast time wanted to go so there would have being 4 of us, but then my cousin then couldn't end up making it, so me and my other 2 cousins still said why not go, my mum said shed have owen, and ide sorted transport out for school for owen to get picked up and dropped of at my mum's, so i'm going again next month, i'm wondering what it will be like with just us as ther my cousin that 21, myself 23 and my ther cousin 30, as usualloy there's my mum and auntie, so i'm wondering if it'll be much different with just the younger ones this time round.
i love doing cross stitch and just wanted to share a picture on one ive done ready for my little sister's birthday in October, it took me 4 day's to do, and i love making them for people, as it's something you've done yourself , so it's more personalized and it feels good to make something and know you've done it, hard to explain haha.
pictures look away if squeamish